The International Conference on Research Infrastructures (ICRI 2021) held virtually in Ottawa, Canada, on June 1-3, 2021, with over 600 delegates. It was the fifth edition of the Conference for the first time hosted by a country in North America. The Conference was a great occasion to build on the discussions and conclusions of the… Read More »
News
The Research Infrastructures Working Group within the Italian Agency for the Promotion of European Research (APRE) issued the Recommendations for exploiting Research Infrastructures in Horizon Europe (HE), which aims at identifying key areas of intervention to propose specific measures for promoting the participation of the Research Infrastructures in all areas of the new Horizon Europe Programme…. Read More »
EPTRI is member of the European Alliance for Transformative Therapies (TRANSFORM), which is a multi-stakeholder Alliance endorsed by Members of the European Parliament and policy-makers, that connects patient groups, medical experts and associations, scientists, researchers, industry actors, networks and other relevant stakeholders. The aim of the Alliance is to foster dialogue and provide evidence-based policy… Read More »
The TEDDY Network annual General Assembly meeting will be held remotely on 22 June 2021 from 9.00 AM to 01.00 PM. Some of the topics to be discussed are the TEDDY engagement on promoting children rights and empowerment, data protection issues, drug discovery in paediatric research as well as the TEDDY European Paediatric Medicines… Read More »
Are you developing a new medicine and/or device specific for children and you need some facilities or expertise for its execution? Do you have an innovative idea on paediatric related topics and want to apply for a call for proposal? EPTRI services are right for you! EPTRI is a distributed research infrastructure with more… Read More »
Donato Bonifazi, CVBF CEO and EPTRI Coordinator, participated as Work Package (WP) Leader of the WP dedicated to development of tools to facilitate paediatric clinical trials and chaired the session ‘Beyond PedCRIN: Synergies with the existing networks and initiatives’, during the PedCRIN (Paediatric Clinical Research Infrastructure Network) final meeting held on June 16th, 2021. PedCRIN… Read More »
The scientific biomedical field is encompassing a flourishing revolution with innovative techniques as massive sequencing capacity, gene editing and tissue engineering which has stimulated the development of new drugs outside chemical paradigm as the advanced therapies (ATMPs). The ATMPs represents an opportunity for inherited disorders, occurring in about 2%-5% of all live births and accounting… Read More »
An International Clinical Practice Guideline based on Systematic Reviews to guide early intervention in children aged 0 to 2 with Cerebral palsy (CP) were published on Jama Paediatrics Journal. CP is the most common childhood physical disability. Early intervention for children younger than 2 years with or at risk of CP is critical. Now that… Read More »
Approximately 5,000-8,000 distinct rare diseases affect 6-8% of the EU population i.e. between 27 and 36 million people. Any disease affecting fewer than 5 people in 10,000 in the EU is considered rare. Although this might appear small, it translates into approximately 246,000 people. Nowadays around the 50% of the medicines addressed to children and… Read More »
EPTRI is participating at the European Biotech Week (EBW) 2021! EBW comprises a weeklong series of events celebrating biotechnology, an innovative and vibrant sector launched by the discovery of the DNA molecule back in 1953. The first European Biotech Week took place in 2013, marking the 60th anniversary of this pivotal moment in history. Thanks… Read More »