During the first day of the 3rd General Assembly meeting of EPTRI, held in Madrid at the Ministry of Health, Consumption and Social Welfare on the 27th of March, took place a Roundtable with seventeen European Stakeholders coming from Paediatric Networks, Research Infrastructures (RIs), European Reference Networks (ERNs), Charities, Patients’ associations, Young Patients Advisory Groups (YPAGs) , Companies’ Federations, Regulatory Agencies, Governments and Authorities.
Panelists were asked to provide their views on how to aggregate the huge research capacities existing in Europe to produce enhanced results through collaboration, foster the cooperation of the different initiatives and support the growth of EPTRI along with the vision of the main stakeholders through their ideas and opinions on the results of the first year of project.
They discussed about different issues t such as key innovative technologies, the relevance of the regulatory framework, the patients involvement and the importance of reducing the fragmentation of the paediatric research through the harmonization of procedures.
Feedbacks received from the stakeholders were crucial to confirm the strategic relevance of the scientific domains identified by EPTRI through its thematic platforms. Important advices were provided on how EPTRI can represent the scientific community that is still “underwater” in terms of organisation, governance and funding.
The results of the discussion will be circulated soon in a position paper.