Sant Joan de Déu Research Foundation was created in 2002 to provide a framework for the research activity which is carried out in the biomedical and social spheres at Sant Joan de Déu Maternal and Children’s Hospital in Esplugues, at Sant Joan de Déu Healthcare Park in Sant Boi de Llobregat and in others.
Accordingly, we work jointly with centres of “Hospitaller Order of St. John of God – Aragon-San Rafael Province” to expand scientific knowledge and to improve the care given to people who suffer health problems. Moreover, we seek to achieve these ends in an integrated way within the healthcare sphere, always bearing closely in mind the persons who are ill and the members of their families. We approach our research as a participative and interdisciplinary process.
Our institution has an dedicated department to Patient Advocacy in Research, that is leading the coordination of KIDS Barcelona (Young Patients Advisory Group- YPAG) and also the eYPAGnet (European YPAGs network) that has the accreditation of EnprEMA.
FSJD main contribution will be to develop the communication and dissemination plan for the RI and for the Conceptual Design Report, including activities related to increase awareness on pediatric research; designing the project website, develop communication materials as well as to ensure the patient’s involvement during the design of the RI by their participation in different focus groups.
Main tasks in the project:
FSJD will be the leader of WP11. Its main contribution will be to develop the communication and dissemination plan for the RI and for the Conceptual Design Report, including activities related to increase awareness on paediatric research; to develop communication materials as well as to ensure the patient’s involvement during the design of the RI by their participation in different focus groups. FSJD will participate also in WP2, WP3, WP4, WP9, WP10.