During the first day of the 3rd General Assembly meeting of EPTRI, held in Madrid at the Ministry of Health, Consumption and Social Welfare on the 27th of March, took place a Roundtable with seventeen European Stakeholders coming from Paediatric Networks, Research Infrastructures (RIs), European Reference Networks (ERNs), Charities, Patients’ associations, Young Patients Advisory Groups… Read More »
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The 3rd General Assembly meeting of the European Paediatric Translational Research Infrastructure (EPTRI) was held in Madrid at the Ministry of Health, Consumption and Social Welfare on the 27th and 28th of March 2019. The event was the occasion to sum up the activities and the goals achieved in the first year of the project as well as… Read More »
It is generally recognized that there is an urgent need to develop new and better medicines for children, and that is why the EPTRI project appears in the current European scenario. We aim at building a European Paediatric Translational Research Infrastructure in order to facilitate collaborations for paediatric basic research, including developing biomarkers, identifying molecules… Read More »
We are very happy to inform that also the Romanian version of the survey on formulation has been developed, with the help of the Romanian partner Romanian Angel Appeal Foundation and is available online at this link. As you may know, we are asking children around the world to tell us how much they like… Read More »
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The fifth edition of the BIAT (Borsa dell’Innovazione e dell’Alta Tecnologia/ Innovation and High Technology Lab) was held this year in Bari on 11st-12nd April 2019. The BIAT – Innovation and High Technology Lab, funded under the Cohesion Action Plan of the Economic Development Ministry, is an initiative designed to enable the enterprises and research… Read More »
The ICE (Italian Trade and Investment Agency of the Italian Ministry of Economic Development), as part of the South Export Plan, organized a mission in Tel Aviv (Israel) involving the following sectors: Aerospace, Automotive, Life Sciences/Agritech and Cybersecurity. Israel ranks first among the countries that invest the most in research and development, surpassing countries such… Read More »
In the framework of the next EPTRI General Assembly meeting that will be held in Madrid on March 27-28th, an Open Day Meeting will be organised on March 27th at the Ministry of Health. The meeting will foresee a dedicated focus to patients through a workshop where the actors will be youth leaders of the… Read More »
We wanted to ask children and young people to help us to investigate how much they like the medicines (and the administration route of the drug) they take and how they would like their medicines to be. To this aim, a survey has been prepared by the EPTRI Work Package 8 and revised and translated… Read More »
World Rare Disease Day is a very special event taking place the last day of February every year. The aim of this worldwide campaign is to raise awareness amongst society and policy-makers about rare diseases and their impact on the lives of patients and families. It is crucial to communicate the need of more research and improved social… Read More »