We wanted to ask children and young people to help us to investigate how much they like the medicines (and the administration route of the drug) they take and how they would like their medicines to be. To this aim, a survey has been prepared by the EPTRI Work Package 8 and revised and translated by the members of the three European YPAGs (Young Persons Advisory Group) KIDS Albania, KIDS Barcelona and KIDS Bari to make it children-friendly.
The YPAGs members provided inputs by identifying the difficulties to make the questions originally designed by adults and for adults clearly understandable to the young people. They proposed to simplify the language, adding clearer explanation of some questions and making the terms less specific for very young people. Alike, GenerationR in UK and Kids France have been involved and will support in the dissemination of the survey in their countries.
Would you like to help us to disseminate the survey? Please find below the links to the questionnaires in English, Italian, Albanian and Spanish.
It will take approximately 5 minutes to fill in the survey and it has to be completed ONLY by PATIENTS AND HEALTHY CHILDREN UP TO 18 YEARS OF AGE.
Please do not use Firefox to fill the survey as you may encounter some technical problems.
If you have questions about this survey, please feel free to send us an email at [email protected]
Thank you for your help!