The European Joint Programme on Rare Diseases (EJP RD) has launched the EJP RD Joint Transnational Call (JTC) 2021 and will fund multilateral research projects on rare diseases under the EJP-COFUND action. EJP RD has successfully implemented two Joint Transnational Calls since 2019 to further help in coordinating the research efforts of European, Associated and… Read More »
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On the 25th November 2020, the Commission adopted a “Pharmaceutical strategy for Europe” to ensure patients have access to innovative and affordable medicines and to support the competitiveness, innovative capacity and sustainability of the EU’s pharmaceutical industry. EPTRI participated in the consultation phase underlining the necessity to stress new adequate health policies and actions promoting… Read More »
Last December 17th, an online event has been organised to present and disseminate the survey on Oral formulations and Administration Devices survey developed by EPTRI (European Paediatric Translational Research Infrastructure) and the EuFPI (European Paediatric Formulation Initiative). The webinar was addressed to all youths under the age of 18 who are also the target of... Read More »
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Dear Friends, this very challenging year is coming to an end and I would take this occasion to thank all of you for your continued collaboration and engagement that has allowed EPTRI to reach great achievements. As you know, EPTRI ended the design phase and just entered in the preparatory phase. We have also submitted… Read More »
On the 11th August 2020, the European Commission published its joint evaluation on the legislation on medicinal products for paediatric use and on orphan medicinal products. This is the first comprehensive evaluation of the two Regulations since their adoption in 2000 and 2006 respectively. They are evaluated together, given that the majority of rare diseases may… Read More »
The 8th Congress of the European Academy of Paediatric Societies (EAPS 2020) was held virtually on the 16th– 19th of October, 2020 and was organised by three societies: the European Academy of Paediatrics (EAP), the European Society for Paediatric Research (ESPR) and the European Society of Paediatric and Neonatal Intensive Care (ESPNIC) with the eleven other European paediatric societies joining as collaborating... Read More »
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From the 28th of September until the 04th of October, the 2020 Edition of the European Biotech Week took place. In occasion of this event, EPTRI organised the following three webinars aimed to increase knowledge on how biotech has contributed to improve our life offering solutions to the major societal challenges: Webinar: Precision Medicine in… Read More »
The EPTRI virtual meeting was held virtually on December 1st 2020. The meeting was addressed to all the 112 Research Institutions which signed the EPTRI Memorandum of Understanding aimed at organising the large existing community of paediatric researchers and facilities to impact the R&I in the drug discovery, design and development processes. The three hours… Read More »
From 17th to 20th November the European Biobank Week 2020 took place in a virtual format. The conference was a joint effort of ESBB and BBMRI-ERIC and for the first time it was fully digitized. Within the event, the abstract “Paediatric patients’ involvement fostered by EPTRI” was chosen for an oral speech held by Dr…. Read More »
Europe Biobank Week 2020 will take place between 17th-20th of November 2020 in a virtual format for the first time. This year two abstracts have been chosen for an oral speech on behalf of EPTRI, the European Paediatric Translational Research Infrastructure. The speech of Prof. Elke Smits will be on “Making Paediatric Biobanking a Sustainable… Read More »